I’ve recently found Seeing MS, a site that tries to help explain some of the symptoms of Multiple Sclerosis through photography and a short video of each symptom. I think they’ve done as good a job as possible at showing others what the symptoms feel like to those of us that are experiencing them.
For the past few months, I have been off work while I recover from an MS exacerbation. For the past few weeks, I have been dealing with another increase and worsening of the symptoms. The cane that I have been using for the past few months has been replaced by a walker. It’s not very sexy, but it is much safer and has helped me to be able to get out of the house occasionally without using a wheelchair. I have received some steroid treatment and hope that it will help turn things around soon, along with the exercises that visiting occupational therapist and physiotherapist have been teaching me. In the meantime, I spend a lot of time in doctor’s offices trying to explain what is going on in my body. I have often wished that it was possible to project the way it feels for a few moments, to avoid trying to explain it, but I also wouldn’t necessarily wish the feelings on anyone else.
Right now, my main symptom is spasticity. The photo above is one photographer’s interpretation of that symptom. It does a great job of showing the feeling I’ve had this winter of trying to get outside with the slippery ground while using a cane. The other photos on the website are also good representations of the other main symptoms of MS. I’d recommend having a look if you know anyone affected by the disease.